Post by kemo on Jan 25, 2008 8:39:50 GMT
Hi guys, just wondering did anyone see this programme that aired last night on C4? I have to say I was blown away by this young mans ability. A true child genius that has to harbor a terrible disease being cystic fibrosis. I watched in amazement at the amount of medication he had to take daily, (up to 50 pills) not including his IV's that were directly pumped into his stomach. But this doesn't stop Alex pursuing his love "music." 'Music makes me forget about where I am or what state I am in or what's happening to my lungs. Music is my hope. It's everything.'
To give anyone who has never watched the show last night a little insight here the information taken from the C4 Website
A Boy Called Alex
Alex has cystic fibrosis, a genetically-inherited disease which is slowly destroying his digestive system and his lungs.
Alex has a particularly virulent form. Over the years, the disease has attacked his bones and left him partially deaf, especially distressing for a musician.
There is no cure. Without the massive thingytail of drugs pumped into his bloodstream day and night, Alex would not be alive today.
His greatest musical challenge
Neither the drugs nor the disease will stop Alex from now taking on the greatest musical challenge of his life: to conduct a performance of Bach's epic choral work, the Magnificent, before an audience of several hundred people in the glorious setting of Eton's 15th century chapel.
As Alex explains, 'Music makes me forget about where I am or what state I am in or what's happening to my lungs. Music is my hope. It's everything.'
Here is the link to the C4 website
A Boy Called Alex
To give anyone who has never watched the show last night a little insight here the information taken from the C4 Website
A Boy Called Alex
Alex has cystic fibrosis, a genetically-inherited disease which is slowly destroying his digestive system and his lungs.
Alex has a particularly virulent form. Over the years, the disease has attacked his bones and left him partially deaf, especially distressing for a musician.
There is no cure. Without the massive thingytail of drugs pumped into his bloodstream day and night, Alex would not be alive today.
His greatest musical challenge
Neither the drugs nor the disease will stop Alex from now taking on the greatest musical challenge of his life: to conduct a performance of Bach's epic choral work, the Magnificent, before an audience of several hundred people in the glorious setting of Eton's 15th century chapel.
As Alex explains, 'Music makes me forget about where I am or what state I am in or what's happening to my lungs. Music is my hope. It's everything.'
Here is the link to the C4 website
A Boy Called Alex
